PatientCrossroads CMD


           

CMD Tissue Repository & BIobank


CMD Tissue Repository at the Medical College of Wisconsin

The CMD Tissue Repository (CMD-TR) is a place to safely store tissue samples that can be used for research.
Our mission is to provide a free service to patients and families interested in supporting medical research and treatment options through tissue donation.  Access to these tissues is critical to the progression of research and the development of treatment therapies, but most people do not know how easy it is for them to support medical research in this way.  Your donated tissue will be distributed for use in research studies without any need for your future involvement or any cost to you.  All ages and most types of congenital muscle disease are accepted.

Why Donate Tissue to the CMD-TR?

•   Samples are needed from many patients to test theories and treatment strategies
•   Centralized collection, storage, and delivery of tissue to qualified scientists can advance patient care and accelerate treatment development to clinical trials
•   Your muscle biopsy can be transferred to the CMD-TR for sharing with numerous research labs
•   When planning a medical procedure, including end-of-life plans, contact the CMD-TR manager to find out how tissue samples could be donated
•   Your organ donation wishes are honored alongside your tissue donation wishes to the CMD-TR.

What are some scenarios when samples can be transferred from my hospital to the CMD-TR?
1. Along with a routine surgery where discard tissue is available at no extra risk to the patient
2. Months or even years after a muscle biopsy was done when left-over tissue remains after diagnostic testing is complete
3. End-of-life decisions for a loved one
 
Email  This e-mail address is being protected from spambots. You need JavaScript enabled to view it  or call Stacy Cossette 704-750-5155 to participate.


CMD Biobank at the Coriell Institute

By creating a well characterized, central source of samples from individuals with congenital muscle disease, the CMDIR and the Coriell Institute are working together to facilitate congenital muscle disease research and invest in the future of therapies. The CMD BioBank will be housed in the National Institute of General Medical Sciences Human Genetic Cell Repository at the Coriell Institute in Camden, New Jersey. Samples in the NIGMS repository have been utilized in over 5,000 scientific publications by researchers in more than 50 countries.  Click here for an overview of Coriell's biobanking services.

The CMDIR will support the CMD BioBank by identifying and facilitating sample transfers from existing collections at other institutions. To provide scientists with a de-identified data set, CMD BioBank samples will link to existing profiles in the CMDIR through a deindetifying ID number. The CMDIR staff will provide the following information to be stored with the sample: age at the time of sample donation, genetic diagnosis, maximal motor function, breathing status, and level of heart and brain involvement. Having this detailed information regarding clinical severity assists scientists using the samples in understanding therapy response.

If you would like more information about the CMD Biobank and how to donate, please email This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
 

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