PatientCrossroads CMD


           

Clinic Partners

Country: United States (California)
Clinic Name: Rady Children’s Hospital Pediatric and Adult Neuromuscular Disease Clinic
Clinic Director: Dr. Carla Grosmann, MD
Contact Person: Diane Carlson, RN
Address: 7910 Frost Street, San Diego, CA 92123
Phone Number: 858-966-4073 or 800-788-9029
https://www.rchsd.org/programsservices/a-z/n-o/neurology/

Country: United States (California)
Clinic Name: Stanford Hospital Neuromuscular Program (Adults)
Clinic Director: John W. Day, MD, Ph.D.
Contact Person: Jennifer Fisher, Community Outreach Liaison
Phone Number:  650-497-5934
Address: 211 Quarry Road, Mail Coad 5992, Palo Alto, CA 94304
For Clinic Appointments:  650-723-6469
www.stanfordhospital.org/clinicsmedServices/COE/neuro/neuromuscularDisorders

Country: United States (California)
Clinic Name: Lucile Packard Neuromuscular Program (Children)
Clinic Director: John W. Day, MD, Ph.D.
Contact Person: Jennifer Fisher, Community Outreach Liaison
Phone Number:  650-497-5934
Address: 730 Welch Road 2nd Floor, Palo Alto, CA 94304
For Clinic Appointments:  650-723-0993

Country: United States (Connecticut)
Clinic Name: Pediatric Neuromuscular Clinic, Department of Pediatrics, Division of Neurology, Connecticut
Clinic Director: Dr. Gyula Acsadi, MD

Country: United States (Iowa)
Clinic name: University of Iowa Neuromuscular Program
Clinic Director:  Katherine Mathews, MD
Patient Contact person: Christina Trout, RN, MSN
Address: 200 Hawkins Drive, Iowa City, IA 52242
Phone number: 319-353-6200

Country: United States (Maryland)
Clinic Name: Kennedy Krieger Institute
Clinic Director: Dr. Kathryn Wagner, MD, PhD
Address: 801 N. Broadway, Baltimore, MD 21205
Phone Number: 443-923-9525

Country: United States (Massachusetts)
Clinic Name: Children’s Hospital of Boston Neuromuscular Program
Clinic Director: Dr. Peter Kang
Address: 300 Longwood Avenue, Boston, MA 02115
Phone Number: 617-355-8235

Country: United States (Massachusetts)
Clinic Name: Massachusetts General Hospital Pediatric Neuromuscular Program
Clinic Director: Dr. Fawn Leigh
Clinic Coordinator:  Kaylen Smith
Address: 165 Cambridge Street, Suite 820, Boston, MA 02114
Phone Number: 617-643-4645

Country: United States (Michigan)
Clinic Name: Pediatric Neuromuscular & Duchenne Muscular Dystrophy Clinics, University of Michigan Health System
Clinic Director: Dr. James Dowling, MD, Dr. Joe Hornyak, MD
Contact Person: Kimberly Amburgey, Rosangel Cruz
Address: 300 North Ingalls Building, 5E02, Ann Arbor, MI 48109
Phone Number: 734-232-9953

Country: United States (New York)
Clinic Name: Pediatric Neuromuscular Disease Clinic, Columbia University
Clinic Director:

Country: United States (Ohio)
Clinic Name: Cincinnati Children's Hospital Medical Center
Clinic Director: Dr. James Collins, Dr. Brenda Wong
Contact Person:  Denise Van Over
Address:  3333 Burnet Avenue, Cincinnati, Ohio 45229-3026
Phone Number:  513-636-4222

Country: United States (Ohio)
Clinic Name: Neuromuscular Clinic at Nationwide Children’s Hospital
Clinic Director: Dr. Jerry Mendell, MD
Contact Person:  Carrie Hoover, CMA (Clinical Coordinator)
Address:  555 S. 18th Street, 5th Floor, Suite C, Columbus, OH 43205
Phone Number:  614-722-2203
www.nationwidechildrens.org/neuromuscular-clinics

Country: United States (Texas)
Clinic Name: Pediatric Neuromuscular Disease Clinic, Children’s Medical Center Dallas
Clinic Director: Dr. Susan Iannaccone, MD, Dr. Diana Castro, MD (Neuromuscular Fellow)
Contact Person: Heather Gilbreath, MPAS, PA-C
Address: 2350 Stemmons Freeway, Dallas, TX 75207
Phone Number: 214-456-2768

Country: United States (Washington, DC)
Clinic Name: Neuromuscular and Neurogenetic Disorders of Childhood Section (NNDCS), National Institute of Health
Clinic Director: Dr. Carsten Bonnemann, MD,  Sandra Donkervoort, MS, CGC
Contact Person: Elizabeth Hartnett, Patient Care Coordinator
Address: 10 Center Drive, CRC, Room 12N210, MSC 1904, Bethesda, MD 20892-1904
Phone Number: 301-402-8274

Country: United States (Washington, DC)
Clinic Name: Neurology Department, Children’s National Medical Center
Clinic Director: Dr. Carolina Tesi-Rocha, MD, Dr. Sally Evans, MD, Meganne Leach, PNP-BC
Address: 111 Michigan Ave NW, Washington DC 20010
Phone Number: 202-476-2771

Country: Australia
Clinic Name: Neurogenetics Clinic & Neuromuscular Management Clinic
Clinic Director: Prof Kathryn North (Head, INMR)
Contact Person: Daralyn Hodgson (Clinic Coordinator)
Address: Cnr Hawkesbury Road and Hainsworth Street, Westmead NSW 2145 Australia
Phone Number: +61 2 9845 0000 (Hospital Switchboard)

Country: Canada
Clinic Name: Alberta Children's Hospital
Clinic Director: Dr. Jean Mah
Contact Person: Kellie Lombardo, RN
Address: 2888 Shaganappi Trail NW, Calgary, Alberta
Phone Number: 403-955-7609

Country: Germany
Clinic Name: Children´s University Hospital Essen, Dept. of Neuropediatrics / Neuromuscular Disorders
Clinic Director: Head Prof. Dr. Ulrike Schara
Contact Person: Prof. Dr. U. Schara, Dr. Sören Lutz
Address: Hufelandstrasse 5545122 Essen, Germany
Phone Number: 226110860.527574

Country: Serbia
Clinic Name: Clinic for Neurology and Psychiatry for Children and Youth
Clinic Director: Prof Slobodanka Todorovic, MD,PhD
Contact Person: Prof Vedrana Milic Rasic, MD, PhD
Address: Dr Subotica 6A, 11 000 Belgrade, Serbia
Phone Number: +381 11 2658 355